Saturday, July 18, 2009

Trigeminal Neuralgia, and Pain Watch Day 2

Kind of a whirlwind 24 hours. Here's the update:
  • In researching the illness, I found a community group of Trigeminal Neuralgia sufferers. The horror stories there are not good, and the first person to reply to my post suggested that in the end I probably will have wished for a diagnosis like a tumor or cancer because the pain is so bad. Gee, thanks pal.
  • The community has some good folks there, but many are mired in their pain. Unfortunately, this condition is nicknamed the "suicide disorder," as the pain is so intense and suffers stigmatized ("Hey, you look healthy, you sure you're not faking?") that some sufferers opt for the easy way out. Mine is not that bad, and I'm planning on staying out of that community unless I really need their help. Too much negativity...
  • I booked an appointment for the Mayo Clinic. We have the world's finest medical facility in our back yard, and I'd be an idiot not to take advantage of it. Nothing has been confirmed yet, but the wheels are in motion.
  • Left eye still hurts, but the small "pings" I was suffering for parts of the day appear under control. They're not fun, and if they can be kept away I'll handle the other stuff. Hence, the meds appear to be working (fingers crossed).
  • I'm looking forward to a nice long bike ride around Lake Waconia today and cranking out another chapter of A Dog Named Blitz. Life will go on as scheduled.

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